{"id":20235,"date":"2025-07-24T09:30:15","date_gmt":"2025-07-24T13:30:15","guid":{"rendered":"https:\/\/www.mesotheliomahope.com\/?p=20235"},"modified":"2025-07-24T23:14:53","modified_gmt":"2025-07-25T03:14:53","slug":"tips-for-talking-to-your-doctor-about-new-mesothelioma-treatments","status":"publish","type":"post","link":"https:\/\/www.mesotheliomahope.com\/blog\/tips-for-talking-to-your-doctor-about-new-mesothelioma-treatments\/","title":{"rendered":"5 Tips for Talking to Your Doctor About New Mesothelioma Treatments"},"content":{"rendered":"<p>While there isn\u2019t a cure for <a href=\"\/mesothelioma\/\">mesothelioma<\/a>, new and emerging treatment options are helping people live longer with this cancer. However, some patients may not know how to access these treatments or discuss them with their doctors.<\/p>\n<p>If you have been diagnosed with mesothelioma, these 5 tips can help you talk with your doctor about getting the latest treatments.<\/p>\n<h2>1. Make Sure Your Doctor Is Experienced With Mesothelioma<\/h2>\n<p>Not all doctors have expertise in treating mesothelioma or supporting patients diagnosed with this aggressive cancer. This can result in patients not being able to access critical treatments.<\/p>\n<p>For these reasons, it is important to find a <a href=\"\/treatment\/doctors\/\">mesothelioma specialist<\/a> near you. These doctors often have years of experience treating this cancer and will be familiar with the best treatments for your specific case.<\/p>\n<div class=\"blockquote-w-image \"><img decoding=\"async\" src=\"\/wp-content\/uploads\/2021\/10\/raja-flores-profile.png\" alt=\"\" \/><blockquote><p>\u201cYou want to visit somebody that sees a lot of mesothelioma. Just because someone&#8217;s a surgeon or oncologist doesn&#8217;t mean that they see a lot of mesothelioma, so you want to work with someone that&#8217;s a real mesothelioma specialist.\u201d<\/p>\n<footer>&ndash;<cite> Dr. Raja Flores, Mesothelioma Specialist at Mount Sinai Hospital<\/cite><\/footer><\/blockquote><style type=\"text\/css\">.blockquote-w-image{position:relative;margin:40px auto}.blockquote-w-image blockquote{background:none;border-left:none;padding:25px;margin-top:0;padding-bottom:0;font-size:inherit;line-height:inherit}.blockquote-w-image blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote p{margin-bottom:0}.blockquote-w-image img{width:100px;border:none;border-radius:100%;box-shadow:none;position:relative;margin:0 auto}.blockquote-w-image.alternative{margin:60px auto}.blockquote-w-image.alternative blockquote{padding:25px 25px 25px 80px;padding-bottom:25px;background-color:#E4F4F6}.blockquote-w-image.alternative img{position:absolute;left:20px;top:25px;z-index:1;width:50px;border:1px solid #fff;box-shadow:0 0 10px rgba(34,34,34,0.2);border-radius:100%}.blockquote-w-image.with-border{background:none;border-left:4px solid #0FAEBF}.blockquote-w-image.with-border blockquote{background:none;border-radius:0;padding:10px 25px}.blockquote-w-image.with-border blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote:before{display:none}@media screen and (min-width: 769px){.blockquote-w-image img{position:absolute;left:0;top:0}.blockquote-w-image blockquote{padding:0 25px 0 125px;min-height:90px}}@media screen and (min-width: 1024px){.blockquote-w-image.alternative blockquote{padding-left:105px}.blockquote-w-image.alternative blockquote footer cite{font-size:16px}.entry-content .blockquote-w-image.alternative img{width:60px;left:25px}}<\/style><\/div>\n<p>Get help finding a specialist near you with our <strong>Free Doctor Match<\/strong> service.<\/p>\n<h2>2. Bring a Friend or Family Member<\/h2>\n<p>Family and friends are so important throughout your journey with mesothelioma. Having someone with you during a medical visit \u2014 especially if you\u2019re discussing possible <a href=\"\/treatment\/\">treatment options<\/a> \u2014 can help tremendously.<\/p>\n<p>Whether it\u2019s a friend, spouse, or family member, this person can help you communicate your thoughts, ask questions, and advocate for your health.<\/p>\n<p>They might even think of a question or concern about new mesothelioma treatments that you hadn\u2019t yet considered or weren\u2019t comfortable bringing up.<\/p>\n<div class=\"blockquote-w-image \"><img decoding=\"async\" src=\"\/wp-content\/uploads\/2023\/02\/amy-fair-nurse.png\" alt=\"\" \/><blockquote><p>\u201cI tell people don\u2019t let those doctors intimidate you. That is your time. You may start your treatment and all your questions aren&#8217;t answered. So be proactive or have somebody there be proactive. They&#8217;re just human beings, too. So get their attention.&#8221;<\/p>\n<footer>&ndash;<cite> Amy Fair, RN, Mesothelioma Hope Patient Advocate<\/cite><\/footer><\/blockquote><style type=\"text\/css\">.blockquote-w-image{position:relative;margin:40px auto}.blockquote-w-image blockquote{background:none;border-left:none;padding:25px;margin-top:0;padding-bottom:0;font-size:inherit;line-height:inherit}.blockquote-w-image blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote p{margin-bottom:0}.blockquote-w-image img{width:100px;border:none;border-radius:100%;box-shadow:none;position:relative;margin:0 auto}.blockquote-w-image.alternative{margin:60px auto}.blockquote-w-image.alternative blockquote{padding:25px 25px 25px 80px;padding-bottom:25px;background-color:#E4F4F6}.blockquote-w-image.alternative img{position:absolute;left:20px;top:25px;z-index:1;width:50px;border:1px solid #fff;box-shadow:0 0 10px rgba(34,34,34,0.2);border-radius:100%}.blockquote-w-image.with-border{background:none;border-left:4px solid #0FAEBF}.blockquote-w-image.with-border blockquote{background:none;border-radius:0;padding:10px 25px}.blockquote-w-image.with-border blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote:before{display:none}@media screen and (min-width: 769px){.blockquote-w-image img{position:absolute;left:0;top:0}.blockquote-w-image blockquote{padding:0 25px 0 125px;min-height:90px}}@media screen and (min-width: 1024px){.blockquote-w-image.alternative blockquote{padding-left:105px}.blockquote-w-image.alternative blockquote footer cite{font-size:16px}.entry-content .blockquote-w-image.alternative img{width:60px;left:25px}}<\/style><\/div>\n<h2>3. Gather Information About New Mesothelioma Treatments Beforehand<\/h2>\n<p>Many mesothelioma doctors are researching new approaches to treatment, with advancements being made every year.<\/p>\n<p>For example, the immunotherapy drugs nivolumab (Opdivo\u00ae), ipilimumab (Yervoy\u00ae), and pembrolizumab (Keytruda\u00ae) were approved by the U.S. Food &amp; Drug Administration (FDA) in 2020 for various approaches to mesothelioma treatment. Since then, <a href=\"\/treatment\/immunotherapy\/\">immunotherapy<\/a> has helped many patients improve their life expectancies.<\/p>\n<p>However, not all doctors may recommend immunotherapy and other new treatments initially. For this reason, it may help to do some research on <a href=\"\/treatment\/emerging-treatments\/\">emerging therapies for mesothelioma<\/a>.<\/p>\n<p><strong>Some of these emerging therapies include:<\/strong><\/p>\n<\/p>\n<ul class='columns-2'>\n<li>ADI-PEG20 (<a href=\"\/treatment\/chemotherapy\/pegargiminase\/\">pegarginimase<\/a>)<\/li>\n<li><a href=\"\/treatment\/immunotherapy\/mesothelioma-vaccine\/\">Cancer vaccines<\/a><\/li>\n<li>Chemotherapy glue<\/li>\n<li>Cryotherapy<\/li>\n<li><a href=\"\/treatment\/epigenetic-therapy\/\">Epigenetic therapy<\/a><\/li>\n<li><a href=\"\/treatment\/gene-therapy\/\">Gene therapy<\/a><\/li>\n<li><a href=\"\/treatment\/chemotherapy\/hithoc\/\">HITHOC for pleural mesothelioma<\/a><\/li>\n<li><a href=\"\/treatment\/photodynamic-therapy\/\">Photodynamic therapy<\/a><\/li>\n<li><a href=\"\/treatment\/targeted-therapies\/\">Targeted therapy<\/a><\/li>\n<li><a href=\"\/treatment\/tumor-treating-fields\/\">Tumor treating fields (TTFields)<\/a><\/li>\n<\/ul>\n<p>\n<p>Get the latest information on the leading emerging treatments for mesothelioma in our <strong>Free Immunotherapy Guide<\/strong>.<\/p>\n<div id=\"23756\" class=\"one-off-23756 widget widget_oscar-vque one-off\" data-vqueid=\"23756\"><style type=\"text\/css\" data-style=\"one-off\">.one-off-23756{margin:60px auto}.one-off-23756 a{box-shadow:0 4px 4px 0 rgba(0,0,0,.25);display:block;background:linear-gradient(90deg,#B1E5EA 0,#0FAEBF 100%);padding:20px;text-decoration:none;color:inherit;position:relative;overflow:hidden;max-width:350px;margin:0 auto}.one-off-23756 a::before{background:#EDF8F9;border-radius:0 0 50% 50%;content:'';position:absolute;top:0;height:87%;width:140%;left:-70px;z-index:0}.one-off-23756 .vque-content,.one-off-23756 .image-wrap{z-index:1;position:relative}.one-off-23756 .image-wrap{max-width:163px;display:block;margin:15px auto -21px}.one-off-23756 .heading{font-size:24px;line-height:28px;text-align:center;display:block;max-width:340px;margin:5px auto 25px}.one-off-23756 ul{max-width:160px;list-style:none;margin:-10px auto 22px;text-align:left;font-size:16px;line-height:27px}.one-off-23756 ul li{margin:0;position:relative;padding-left:28px}.one-off-23756 ul li::before{font-family:\"mesohope\"!important;speak:none;font-style:normal;font-weight:normal;font-variant:normal;text-transform:none;line-height:1;content:\"\\e904\";background:#0FAEBF;width:14px;height:14px;display:block;position:absolute;left:0;top:7px;border-radius:50%;color:#fff;font-size:7px;text-align:center;line-height:14px}.one-off-23756 p{text-align:center}.one-off-23756 .button{padding:12px 16px}@media screen and (min-width:768px){.one-off-23756 a{max-width:620px;padding:25px 50px 29px;border-radius:0 0 4px 4px}.one-off-23756 a::before{border-radius:0 0 100% 0;height:83%;width:70%;right:-70px;left:unset}.one-off-23756 a::after{background:#EDF8F9;border-radius:0;content:'';position:absolute;top:0;height:82%;width:50%;left:0;z-index:0}.one-off-23756 .heading{text-align:left;margin:5px 0 25px}.one-off-23756 ul{margin:-10px 0 22px}.one-off-23756 .image-wrap{max-width:unset;position:absolute;right:0;bottom:0;margin:0 0 -2px}.one-off-23756 p{text-align:left}}<\/style><a href=\"\/immunotherapy-guide\/\" title=\"Get Your Free Immunotherapy Guide\" class=\"cte\" data-ce-category=\"In-Content Ads\" data-ce-label=\"Get Your Free Immunotherapy Guide Ad\"><div>\r\n    <div class=\"vque-content\">\r\n        <strong class=\"heading\">Get Your Free Immunotherapy Guide<\/strong>\r\n        <ul>\r\n            <li>When it\u2019s used<\/li>\r\n            <li>Types of drugs<\/li>\r\n            <li>Side effects<\/li>\r\n        <\/ul>\r\n        <p><strong class=\"button arrow\" title=\"Get Your Free Guide\">Get Your Free Guide<\/strong><\/p>\r\n    <\/div>\r\n    <div class=\"image-wrap\"><img decoding=\"async\"  src=\"data:image\/gif;base64,R0lGODlhAQABAAAAACH5BAEKAAEALAAAAAABAAEAAAICTAEAOw==\" data-src=\"\/wp-content\/uploads\/2024\/03\/download-immunotherapy-guide.png\" alt=\"Free Immunotherapy Guide\" class=\"lazyload\" ><\/div>\r\n<\/div><\/a><\/div>\n<h2>4. Take Notes Before and During Appointments<\/h2>\n<p>Even if you already know what you want to ask, it can\u2019t hurt to write down any questions ahead of time. Taking notes will help ensure you don\u2019t forget anything at your appointment and that your doctor addresses all your concerns by the time you leave.<\/p>\n<p><strong>Here are some questions you may want to ask:<\/strong><\/p>\n<ul>\n<li>What treatment options are available to me with my type and stage of mesothelioma?<\/li>\n<li>Would I be a good candidate for immunotherapy?<\/li>\n<li>Are there any <a href=\"\/treatment\/clinical-trials\/\">clinical trials<\/a> that might be a good fit for me?<\/li>\n<li>What side effects can I expect from my treatment?<\/li>\n<li>When should I call or raise concerns about side effects?<\/li>\n<\/ul>\n<p>You (or your loved one) can then take notes on your doctor\u2019s responses to reference later. Our team has also compiled a <a href=\"\/doctor-questions\/\"><strong>free list of 14 questions to ask your doctor<\/strong><\/a> that can help guide your conversation.<\/p>\n<div class=\"blockquote-w-image \"><img decoding=\"async\" src=\"\/wp-content\/uploads\/2023\/03\/andrea-wolf-md.png\" alt=\"\" \/><blockquote><p>&#8220;I try to encourage patients to keep a pen and paper nearby because sometimes it&#8217;s at nighttime or strange hours when they think of questions. Just write them down and bring them to appointments.&#8221;<\/p>\n<footer>&ndash;<cite> Dr. Andrea Wolf, Mesothelioma Specialist at Mount Sinai Hospital<\/cite><\/footer><\/blockquote><style type=\"text\/css\">.blockquote-w-image{position:relative;margin:40px auto}.blockquote-w-image blockquote{background:none;border-left:none;padding:25px;margin-top:0;padding-bottom:0;font-size:inherit;line-height:inherit}.blockquote-w-image blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote p{margin-bottom:0}.blockquote-w-image img{width:100px;border:none;border-radius:100%;box-shadow:none;position:relative;margin:0 auto}.blockquote-w-image.alternative{margin:60px auto}.blockquote-w-image.alternative blockquote{padding:25px 25px 25px 80px;padding-bottom:25px;background-color:#E4F4F6}.blockquote-w-image.alternative img{position:absolute;left:20px;top:25px;z-index:1;width:50px;border:1px solid #fff;box-shadow:0 0 10px rgba(34,34,34,0.2);border-radius:100%}.blockquote-w-image.with-border{background:none;border-left:4px solid #0FAEBF}.blockquote-w-image.with-border blockquote{background:none;border-radius:0;padding:10px 25px}.blockquote-w-image.with-border blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote:before{display:none}@media screen and (min-width: 769px){.blockquote-w-image img{position:absolute;left:0;top:0}.blockquote-w-image blockquote{padding:0 25px 0 125px;min-height:90px}}@media screen and (min-width: 1024px){.blockquote-w-image.alternative blockquote{padding-left:105px}.blockquote-w-image.alternative blockquote footer cite{font-size:16px}.entry-content .blockquote-w-image.alternative img{width:60px;left:25px}}<\/style><\/div>\n<h2>5. Be Patient if Your Doctor Is Cautious<\/h2>\n<p>The best mesothelioma treatment options will vary for each person.<\/p>\n<p>For that reason, your doctor might prefer to wait and see about a new treatment, especially if you\u2019re already responding well to an existing therapy.<\/p>\n<p>If this happens, try not to get discouraged. Your doctor may be able to recommend another treatment option that would work better for your specific diagnosis.<\/p>\n<p>You may also consider seeing another doctor for a <a href=\"\/mesothelioma\/diagnosis\/second-opinion\/\">second opinion<\/a> to ensure you are getting the best possible treatment.<\/p>\n<h2>Get Help Finding the Best Mesothelioma Treatment for You<\/h2>\n<p>Talking about new mesothelioma therapies with your doctor might feel overwhelming, but a bit of planning can help you advocate for yourself and potentially open doors to life-changing treatments.<\/p>\n<p><strong>Our team is also ready to help you:<\/strong><\/p>\n<ol>\n<li>Find the best treatments and doctors in your area<\/li>\n<li>Access financial assistance so you can afford treatment and other expenses<\/li>\n<li>Connect with support groups, peer mentors, and other resources<\/li>\n<\/ol>\n<p>You deserve personalized support as your family navigates mesothelioma. See how we can help by calling <a href=\"tel:+18666088933\" title=\"Click to call (866) 608-8933\" class=\"in-content-tel-link\" data-ce-category=\"Click to Call\" data-ce-label=\"(866) 608-8933\">(866) 608-8933<\/a> or using our <a href=\"\/get-matched\/\"><strong>Free Doctor Match<\/strong><\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>While there isn\u2019t a cure for mesothelioma, new and emerging treatment options are helping people live longer with this cancer. However, some patients may not know how to access these treatments or discuss them with their doctors. If you have been diagnosed with mesothelioma, these 5 tips can help you talk with your doctor about&hellip;<\/p>\n","protected":false},"author":35,"featured_media":20233,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[118],"tags":[],"class_list":["post-20235","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-mesothelioma-treatment"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/posts\/20235","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/users\/35"}],"replies":[{"embeddable":true,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/comments?post=20235"}],"version-history":[{"count":0,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/posts\/20235\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/media\/20233"}],"wp:attachment":[{"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/media?parent=20235"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/categories?post=20235"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/tags?post=20235"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}