{"id":25993,"date":"2025-10-07T09:00:58","date_gmt":"2025-10-07T13:00:58","guid":{"rendered":"https:\/\/www.mesotheliomahope.com\/?p=25993"},"modified":"2025-10-07T11:45:03","modified_gmt":"2025-10-07T15:45:03","slug":"9-tips-for-surviving-mesothelioma","status":"publish","type":"post","link":"https:\/\/www.mesotheliomahope.com\/blog\/9-tips-for-surviving-mesothelioma\/","title":{"rendered":"Surviving Mesothelioma: 9 Tips From Patients, Loved Ones, and Doctors"},"content":{"rendered":"<p>Being diagnosed with <a href=\"\/mesothelioma\/\">mesothelioma<\/a> can bring a flood of emotions, from fear and anxiety to uncertainty about the future. If you or someone close to you is facing this devastating disease, it\u2019s normal to feel overwhelmed \u2014 <strong>but you don\u2019t have to do this alone<\/strong>.<\/p>\n<p>We\u2019ve gathered some of the most impactful and life-changing advice from <a href=\"\/mesothelioma\/prognosis\/survivors\/\">mesothelioma survivors<\/a>, their loved ones, and trusted medical professionals.<\/p>\n<p>Here are 9 tips to help improve your prognosis and maintain your quality of life with mesothelioma.<\/p>\n<h2>Tip #1: Get a Second Opinion<\/h2>\n<p>Because mesothelioma is so rare and shares <a href=\"\/mesothelioma\/symptoms\/\">symptoms<\/a> with more common illnesses, it\u2019s often mistaken for something less serious, like the flu, pneumonia, or gastrointestinal issues.<\/p>\n<div class=\"blockquote-w-image \"><img decoding=\"async\" src=\"\/wp-content\/uploads\/2022\/12\/joseph-friedberg-md.png\" alt=\"\" \/><blockquote><p>&#8220;<strong>The majority of patients end up getting misdiagnosed<\/strong> or treated for a number of other things before it gets figured out.&#8221;<\/p>\n<footer>&ndash;<cite> Dr. Joseph Friedberg, mesothelioma specialist at Fox Chase Cancer Center<\/cite><\/footer><\/blockquote><style type=\"text\/css\">.blockquote-w-image{position:relative;margin:40px auto}.blockquote-w-image blockquote{background:none;border-left:none;padding:25px;margin-top:0;padding-bottom:0;font-size:inherit;line-height:inherit}.blockquote-w-image blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote p{margin-bottom:0}.blockquote-w-image img{width:100px;border:none;border-radius:100%;box-shadow:none;position:relative;margin:0 auto}.blockquote-w-image.alternative{margin:60px auto}.blockquote-w-image.alternative blockquote{padding:25px 25px 25px 80px;padding-bottom:25px;background-color:#E4F4F6}.blockquote-w-image.alternative img{position:absolute;left:20px;top:25px;z-index:1;width:50px;border:1px solid #fff;box-shadow:0 0 10px rgba(34,34,34,0.2);border-radius:100%}.blockquote-w-image.with-border{background:none;border-left:4px solid #0FAEBF}.blockquote-w-image.with-border blockquote{background:none;border-radius:0;padding:10px 25px}.blockquote-w-image.with-border blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote:before{display:none}@media screen and (min-width: 769px){.blockquote-w-image img{position:absolute;left:0;top:0}.blockquote-w-image blockquote{padding:0 25px 0 125px;min-height:90px}}@media screen and (min-width: 1024px){.blockquote-w-image.alternative blockquote{padding-left:105px}.blockquote-w-image.alternative blockquote footer cite{font-size:16px}.entry-content .blockquote-w-image.alternative img{width:60px;left:25px}}<\/style><\/div>\n<p>Peritoneal mesothelioma survivor <a href=\"\/blog\/mesothelioma-survivor-mary-jane-williams\/\">Mary Jane Williams<\/a> visited her doctor to discuss abdominal bloating and weight loss. Unfortunately, she was misdiagnosed and prescribed medication for gastroesophageal reflux disease (GERD).<\/p>\n<p>\u201cMost doctors don&#8217;t see mesothelioma, so they don&#8217;t know what to look for,\u201d Mary Jane warned. \u201cSo if you&#8217;re not happy with the doctor, then you go to someone else. <strong>You keep going until they find out what it is.<\/strong>\u201d<\/p>\n<p>Asking for a <a href=\"\/mesothelioma\/diagnosis\/second-opinion\/\">second opinion<\/a> could confirm your original diagnosis or reveal a different health issue altogether. Either way, you\u2019ll gain peace of mind from knowing you\u2019re getting the right treatment.<\/p>\n<p>Read more mesothelioma tips in our <strong>Free Mesothelioma Survivors Guide<\/strong>, shipped to your door overnight.<\/p>\n<h2>Tip #2: Find a Mesothelioma Specialist<\/h2>\n<p>Seeing a doctor who\u2019s treated multiple cases of mesothelioma is critical to receiving the right care. A general oncologist may not have the in-depth knowledge and experience of a <a href=\"\/treatment\/doctors\/\">mesothelioma doctor<\/a>.<\/p>\n<div class=\"blockquote-w-image \"><img decoding=\"async\" src=\"https:\/\/www.mesotheliomahope.com\/wp-content\/uploads\/2024\/10\/Jessica-Blackford-Cleeton-circle.png\" alt=\"\" \/><blockquote><p>&#8220;When we got the diagnosis of mesothelioma, the doctor was shocked, I was shocked, everyone was shocked. Right away, the doctor said, \u2018I&#8217;ve never seen this before, and I\u2019ll probably never see it again. <strong>We need to get you to a specialist.<\/strong>\u2019&#8221;<\/p>\n<footer>&ndash;<cite> Jessica Blackford-Cleeton, mesothelioma survivor<\/cite><\/footer><\/blockquote><style type=\"text\/css\">.blockquote-w-image{position:relative;margin:40px auto}.blockquote-w-image blockquote{background:none;border-left:none;padding:25px;margin-top:0;padding-bottom:0;font-size:inherit;line-height:inherit}.blockquote-w-image blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote p{margin-bottom:0}.blockquote-w-image img{width:100px;border:none;border-radius:100%;box-shadow:none;position:relative;margin:0 auto}.blockquote-w-image.alternative{margin:60px auto}.blockquote-w-image.alternative blockquote{padding:25px 25px 25px 80px;padding-bottom:25px;background-color:#E4F4F6}.blockquote-w-image.alternative img{position:absolute;left:20px;top:25px;z-index:1;width:50px;border:1px solid #fff;box-shadow:0 0 10px rgba(34,34,34,0.2);border-radius:100%}.blockquote-w-image.with-border{background:none;border-left:4px solid #0FAEBF}.blockquote-w-image.with-border blockquote{background:none;border-radius:0;padding:10px 25px}.blockquote-w-image.with-border blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote:before{display:none}@media screen and (min-width: 769px){.blockquote-w-image img{position:absolute;left:0;top:0}.blockquote-w-image blockquote{padding:0 25px 0 125px;min-height:90px}}@media screen and (min-width: 1024px){.blockquote-w-image.alternative blockquote{padding-left:105px}.blockquote-w-image.alternative blockquote footer cite{font-size:16px}.entry-content .blockquote-w-image.alternative img{width:60px;left:25px}}<\/style><\/div>\n<p><a href=\"https:\/\/www.mesotheliomahope.com\/treatment\/doctors\/dr-hedy-lee-kindler\/\">Dr. Hedy Lee Kindler<\/a>, a Chicago-based mesothelioma specialist, puts it simply: \u201cMesothelioma isn\u2019t lung cancer. To understand the subtleties of it, you need an expert. Especially at the beginning, it\u2019s important to have someone who is comfortable with the disease \u2014 <strong>a quarterback who understands all the options out there<\/strong>.\u201d<\/p>\n<div class=\"callout-shortcode\"><style type=\"text\/css\">.callout-shortcode{background:#EDF8F9;border-radius:0 10px 10px 0;padding:20px 20px 20px 24px;margin:40px 0;max-width:860px;position:relative}.callout-shortcode:before{content:\" \";position:absolute;top:0;bottom:0;width:4px;height:100%;left:0;background:linear-gradient(180deg, #0FAEBF 0%, #EDF8F9 100%)}.callout-shortcode .callout-shortcode-heading{color:#100134;font-size:22px;display:block;margin:0 0 15px}.callout-shortcode:first-child{margin-top:0}.callout-shortcode:last-child{margin-bottom:0}.callout-shortcode .img-wrap{margin-bottom:20px}.callout-shortcode.hope>strong{padding-top:17px;padding-bottom:15px;padding-left:74px}.callout-shortcode.hope .img-wrap{left:22px;position:absolute;top:20px;width:59px}.callout-shortcode.hope .img-wrap:before{background:#fff url(\/wp-content\/uploads\/2024\/02\/mh-icon-65.png);background-position:center;background-repeat:no-repeat;background-size:70%;border-radius:30px;bottom:-10px;content:\"\";display:block;height:30px;position:absolute;right:-10px;width:30px}@media screen and (min-width: 768px){.callout-shortcode{padding:25px 25px 25px 34px}.callout-shortcode .callout-shortcode-heading{font-size:24px}.callout-shortcode .img-wrap{margin-bottom:0}.callout-shortcode.has-img{min-height:170px;padding-left:175px}.callout-shortcode.has-img .img-wrap{position:absolute;left:29px;top:25px;width:119px}.callout-shortcode.hope.has-img{padding-left:170px}.callout-shortcode.hope>strong{padding:0}.callout-shortcode.hope .img-wrap{width:109px}.callout-shortcode.hope .img-wrap:before{background-size:66%;bottom:-15px;height:42px;width:42px}}<\/style><div class=\"content\"><p>Mesothelioma Hope has built relationships with trusted health care partners and top doctors nationwide. Contact our Patient Advocates at <strong><a href=\"tel:+18666088933\" title=\"Click to call (866) 608-8933\" class=\"in-content-tel-link\" data-ce-category=\"Click to Call\" data-ce-label=\"(866) 608-8933\">(866) 608-8933<\/a><\/strong> to find a mesothelioma specialist near you.<\/p>\n<\/div><\/div>\n<h2>Tip #3: Pursue Palliative Care ASAP<\/h2>\n<p><a href=\"\/treatment\/palliative\/\">Mesothelioma palliative care<\/a> takes a comprehensive approach to support your physical, emotional, and mental well-being throughout treatment. This focus on the patient\u2019s quality of life can make treatments easier to withstand.<\/p>\n<p><strong>Starting palliative care early can lead to:<\/strong><\/p>\n<ul>\n<li>Better coordination of holistic care<\/li>\n<li>Effective management of <a href=\"https:\/\/www.mesotheliomahope.com\/treatment\/side-effects\/\">treatment side effects<\/a><\/li>\n<li>Enhanced quality of life<\/li>\n<li>Greater control over symptoms<\/li>\n<li>Improved emotional well-being<\/li>\n<\/ul>\n<p>\u201cWe\u2019ve found that early palliative care involvement is linked to patients having <strong>a better quality of life<\/strong> \u2014 period, full stop,\u201d said Dr. Jacob Strand, a palliative care specialist at <a href=\"\/cancer-centers\/mayo-clinic\/\">Mayo Clinic<\/a>.<\/p>\n<h2>Tip #4: Be Your Own Biggest Advocate<\/h2>\n<p>While your doctor may have your best interests in mind, you should trust your instincts as well. Researching, asking questions, and advocating for yourself or your loved one can help ensure the right care.<\/p>\n<p>When stage producer <a href=\"\/blog\/jimmy-music-producer-and-pleural-mesothelioma-survivor\/\">Jimmy Johnson<\/a> was diagnosed with pleural mesothelioma, his wife Kelley gave up her life\u2019s calling \u2014 traveling with bands and putting on rock shows \u2014 to become his caregiver and advocate.<\/p>\n<div class=\"blockquote-w-image \"><img decoding=\"async\" src=\"\/wp-content\/uploads\/2024\/10\/Kelley_Johnson_circle.png\" alt=\"\" \/><blockquote><p>&#8220;<strong>Advocacy is more important than caregiving<\/strong>, because if you don&#8217;t know your stuff and learn for yourself, you&#8217;re going to be at your wits&#8217; end.&#8221;<\/p>\n<footer>&ndash;<cite> Kelley Johnson, wife of mesothelioma warrior Jimmy Johnson<\/cite><\/footer><\/blockquote><style type=\"text\/css\">.blockquote-w-image{position:relative;margin:40px auto}.blockquote-w-image blockquote{background:none;border-left:none;padding:25px;margin-top:0;padding-bottom:0;font-size:inherit;line-height:inherit}.blockquote-w-image blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote p{margin-bottom:0}.blockquote-w-image img{width:100px;border:none;border-radius:100%;box-shadow:none;position:relative;margin:0 auto}.blockquote-w-image.alternative{margin:60px auto}.blockquote-w-image.alternative blockquote{padding:25px 25px 25px 80px;padding-bottom:25px;background-color:#E4F4F6}.blockquote-w-image.alternative img{position:absolute;left:20px;top:25px;z-index:1;width:50px;border:1px solid #fff;box-shadow:0 0 10px rgba(34,34,34,0.2);border-radius:100%}.blockquote-w-image.with-border{background:none;border-left:4px solid #0FAEBF}.blockquote-w-image.with-border blockquote{background:none;border-radius:0;padding:10px 25px}.blockquote-w-image.with-border blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote:before{display:none}@media screen and (min-width: 769px){.blockquote-w-image img{position:absolute;left:0;top:0}.blockquote-w-image blockquote{padding:0 25px 0 125px;min-height:90px}}@media screen and (min-width: 1024px){.blockquote-w-image.alternative blockquote{padding-left:105px}.blockquote-w-image.alternative blockquote footer cite{font-size:16px}.entry-content .blockquote-w-image.alternative img{width:60px;left:25px}}<\/style><\/div>\n<p>At Mesothelioma Hope, our goal is to be that reliable, knowledgeable presence for you, guiding you through the complexities of <a href=\"\/treatment\/\">treatment<\/a> and helping you make informed decisions.<\/p>\n<p>\u201cFollowing treatment, I was challenged with many long-term side effects. <strong>I had to become my own best advocate<\/strong>,\u201d said Jenna Tozzi, RN, our Chief Patient Care Advisor, who was diagnosed with a rare disease as a teenager.<\/p>\n<h2>Tip #5: Look Into New Treatments &amp; Clinical Trials<\/h2>\n<p>Innovation is happening every day in the world of mesothelioma treatment, with some of the largest gains happening within just the last few years. Every day, hundreds of medical doctors and researchers conduct <a href=\"https:\/\/www.mesotheliomahope.com\/treatment\/clinical-trials\/\">mesothelioma clinical trials<\/a> to test new treatments and get them approved for widespread use.<\/p>\n<p>Treatments in clinical trials are <strong>provided at no cost<\/strong> and can help patients live longer with fewer symptoms. In October 2020, <a href=\"https:\/\/www.mesotheliomahope.com\/treatment\/immunotherapy\/\">immunotherapy<\/a> was approved as a first-line treatment for pleural mesothelioma after positive outcomes for patients in multiple clinical trials.<\/p>\n<p>\u201cAs we learn more and more about these diseases \u2014 how they start, identifying them on a genetic level, and profiling patients and categorizing and personalizing their care \u2014 we can impact patients more directly,\u201d says <a href=\"https:\/\/www.mesotheliomahope.com\/treatment\/doctors\/dr-daniel-labow\/\">Dr. Daniel Labow<\/a>, a peritoneal mesothelioma specialist.<\/p>\n<h2>Tip #6: Manage Your Nutritional Needs<\/h2>\n<p>Mesothelioma treatments may cause side effects such as dry mouth, fatigue, loss of appetite or taste, and nausea. All of these can make it more challenging to get the nutrients you need.<\/p>\n<p>However, proper <a href=\"\/treatment\/diet-and-nutrition\/\">diet and nutrition<\/a> have been medically linked to a range of critical health functions, helping the body to heal itself and recover from medical procedures.<\/p>\n<p><strong>Good nutrition can help you:<\/strong><\/p>\n<ul>\n<li>Better tolerate the side effects of treatment<\/li>\n<li>Have more energy and feel less tired<\/li>\n<li>Heal faster from surgery<\/li>\n<li>Keep your weight steady<\/li>\n<li>Feel strong enough to withstand treatment<\/li>\n<li>Sleep better and stay more positive<\/li>\n<\/ul>\n<p>A mesothelioma survivor since 2018, <a href=\"\/blog\/arthur-putt-retiree-and-survivor\/\">Arthur \u201cArt\u201d Putt<\/a> underwent chemotherapy, which irritated his esophagus. His wife and daughter, both nurses, decided to feed him a medicinal blend of immune-boosting ingredients.<\/p>\n<p>\u201cAt one time, <strong>doctors told me I&#8217;d never eat solid food again,<\/strong>\u201d Art reflects, \u201c<strong>but we showed them wrong<\/strong>.\u201d After weeks of receiving this mixture through his feeding tube, Art felt healthy enough to eat solid foods again.<\/p>\n<p>Get our <strong>Free Survivors Guide<\/strong> to read more of Art\u2019s story and get nutrition tips from our mesothelioma nurse.<\/p>\n<div data-vqueid=\"21915\" class=\"widget widget_oscar-vque light-blue has-img\"><style type=\"text\/css\" data-style=\"default\">.widget_oscar-vque.light-blue{margin:60px auto;line-height:26px;max-width:337px}.widget_oscar-vque.light-blue a{display:block;background:#EDF8F9;border-left:4px solid #0FAEBF;border-radius:0px 8px 8px 0px;padding:25px;color:#100134;text-decoration:none;font-size:16px;text-align:center}.widget_oscar-vque.light-blue .image-wrap{max-width:210px;margin:0 auto 15px}.widget_oscar-vque.light-blue .heading{display:block;font-size:22px;margin-bottom:10px}.widget_oscar-vque.light-blue ul{max-width:245px;list-style:none;margin:0 auto 22px;text-align:left}.widget_oscar-vque.light-blue ul li{margin:0 0 5px;position:relative;padding-left:26px}.widget_oscar-vque.light-blue ul li:before{font-family:\"mesohope\" !important;speak:none;font-style:normal;font-weight:normal;font-variant:normal;text-transform:none;line-height:1;-webkit-font-smoothing:antialiased;-moz-osx-font-smoothing:grayscale;content:\"\\e904\";background:#0FAEBF;width:20px;height:20px;display:block;position:absolute;left:0;top:2px;border-radius:20px;color:#fff;font-size:10px;text-align:center;line-height:20px}@media screen and (min-width: 768px){.widget_oscar-vque.light-blue{max-width:620px}.widget_oscar-vque.light-blue a{padding:0}.widget_oscar-vque.light-blue a>div{display:block;display:flex;flex-wrap:wrap;overflow:hidden;flex-direction:row-reverse}.widget_oscar-vque.light-blue .image-wrap{float:right;align-self:flex-end;padding:0 3%;width:47%;margin:0;max-width:none}.widget_oscar-vque.light-blue .vque-content{float:left;text-align:left;padding:30px;width:53%}.widget_oscar-vque.light-blue .heading{font-size:24px;line-height:1;margin-bottom:13px}.widget_oscar-vque.light-blue ul{margin:0 0 22px}}<\/style><a href=\"\/survivors-guide\/\" title=\"Get Your Free Survivors Guide\" class=\"cte\" data-ce-category=\"In-Content Ads\" data-ce-label=\"Survivors List Ad\" data-desktop-image=\"https:\/\/www.mesotheliomahope.com\/wp-content\/uploads\/2023\/07\/mh-survivor-guide-cover.png\"><div><div class=\"image-wrap\"><img loading=\"lazy\" decoding=\"async\" width=\"431\" height=\"402\" src=\"https:\/\/www.mesotheliomahope.com\/wp-content\/uploads\/2023\/07\/mh-survivor-guide-cover.png\" class=\"attachment-Medium size-Medium wp-post-image\" alt=\"Mesothelioma Survivors Guide\" srcset=\"https:\/\/www.mesotheliomahope.com\/wp-content\/uploads\/2023\/07\/mh-survivor-guide-cover.png 431w, https:\/\/www.mesotheliomahope.com\/wp-content\/uploads\/2023\/07\/mh-survivor-guide-cover-300x280.png 300w\" sizes=\"(max-width: 431px) 100vw, 431px\" \/><\/div><div class=\"vque-content\"><strong class=\"heading\">Get Your Free Survivors Guide<\/strong><ul>\n<li>Survivors who beat the odds<\/li>\n<li>Tips for fighting mesothelioma<\/li>\n<li>Navigating life after treatment<\/li>\n<\/ul>\n<p><strong class=\"button arrow\" title=\"Get It Shipped Overnight\">Get It Shipped Overnight<\/strong><\/p><\/div><\/div><\/a><\/div>\n<h2>Tip #7: Prioritize Your Mental Health<\/h2>\n<p>About <strong>25% of cancer patients experience symptoms of depression<\/strong>, according to the National Cancer Institute. The overwhelming nature of a cancer diagnosis can cause feelings of anxiety, anger, and fear. Therapy and <a href=\"\/resources\/emotional-support\/\">emotional support<\/a> can equip you with tools to manage these feelings and find peace.<\/p>\n<p>\u201cI did feel that the psychologist\u2019s sessions were useful. I would recommend it because they give you coping strategies and things like that,\u201d said Freya, a mesothelioma patient surveyed in a <a href=\"\/blog\/mental-health-and-mesothelioma\/\">recent mental health study<\/a>.<\/p>\n<p><strong>You can get additional support by:<\/strong><\/p>\n<ul>\n<li><strong>Engaging in approved physical activity.<\/strong> Low-impact exercises such as walking, biking, and yoga can help reduce symptoms of anxiety and depression.<\/li>\n<li><strong>Seeking faith-based support<\/strong>. Studies have shown that participation in spiritual or religious activities can help cancer patients in a variety of ways.<\/li>\n<\/ul>\n<p>When you feel low, remember there are people who love and support you.<\/p>\n<div class=\"blockquote-w-image \"><img decoding=\"async\" src=\"https:\/\/www.mesotheliomahope.com\/wp-content\/uploads\/2025\/02\/connie-bonnin-headshot-circle.jpg\" alt=\"\" \/><blockquote><p>&#8220;Mesothelioma is not a disease to travel alone. If you can, get a therapist. You&#8217;re going to need every tool in your arsenal ready to battle this disease.&#8221;<\/p>\n<footer>&ndash;<cite> Connie Bonnin, wife of mesothelioma warrior Alan Bonnin<\/cite><\/footer><\/blockquote><style type=\"text\/css\">.blockquote-w-image{position:relative;margin:40px auto}.blockquote-w-image blockquote{background:none;border-left:none;padding:25px;margin-top:0;padding-bottom:0;font-size:inherit;line-height:inherit}.blockquote-w-image blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote p{margin-bottom:0}.blockquote-w-image img{width:100px;border:none;border-radius:100%;box-shadow:none;position:relative;margin:0 auto}.blockquote-w-image.alternative{margin:60px auto}.blockquote-w-image.alternative blockquote{padding:25px 25px 25px 80px;padding-bottom:25px;background-color:#E4F4F6}.blockquote-w-image.alternative img{position:absolute;left:20px;top:25px;z-index:1;width:50px;border:1px solid #fff;box-shadow:0 0 10px rgba(34,34,34,0.2);border-radius:100%}.blockquote-w-image.with-border{background:none;border-left:4px solid #0FAEBF}.blockquote-w-image.with-border blockquote{background:none;border-radius:0;padding:10px 25px}.blockquote-w-image.with-border blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote:before{display:none}@media screen and (min-width: 769px){.blockquote-w-image img{position:absolute;left:0;top:0}.blockquote-w-image blockquote{padding:0 25px 0 125px;min-height:90px}}@media screen and (min-width: 1024px){.blockquote-w-image.alternative blockquote{padding-left:105px}.blockquote-w-image.alternative blockquote footer cite{font-size:16px}.entry-content .blockquote-w-image.alternative img{width:60px;left:25px}}<\/style><\/div>\n<h2>Tip #8: Connect With a Support Group<\/h2>\n<p>Joining a <a href=\"\/resources\/support-groups\/\">mesothelioma support group<\/a> \u2014 whether online or in person \u2014 connects you with others who truly understand your journey.<\/p>\n<p>After being diagnosed with <a href=\"\/mesothelioma\/peritoneal\/\">peritoneal mesothelioma<\/a>, Mary Jane discovered her calling in serving as a mentor, accompanying other patients to their chemotherapy sessions and brightening their spirits. \u201cI love going for these people,\u201d Mary Jane said. \u201cWe&#8217;re all family. <strong>We are truly family.<\/strong> We can&#8217;t wait to see each other.\u201d<\/p>\n<p>Being part of a community allows you to lift each other up, often without even realizing it. For those facing a mesothelioma diagnosis, sharing the journey with others can bring a profound sense of relief and support.<\/p>\n<div class=\"blockquote-w-image \"><img decoding=\"async\" src=\"\/wp-content\/uploads\/2023\/05\/alexis-kidd-headshot-circle.png\" alt=\"\" \/><blockquote><p>&#8220;The truth is that the only people who <strong>genuinely understand what you are going through<\/strong> are those who have experienced it themselves.&#8221;<\/p>\n<footer>&ndash;<cite> Alexis Kidd, mesothelioma survivor<\/cite><\/footer><\/blockquote><style type=\"text\/css\">.blockquote-w-image{position:relative;margin:40px auto}.blockquote-w-image blockquote{background:none;border-left:none;padding:25px;margin-top:0;padding-bottom:0;font-size:inherit;line-height:inherit}.blockquote-w-image blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote p{margin-bottom:0}.blockquote-w-image img{width:100px;border:none;border-radius:100%;box-shadow:none;position:relative;margin:0 auto}.blockquote-w-image.alternative{margin:60px auto}.blockquote-w-image.alternative blockquote{padding:25px 25px 25px 80px;padding-bottom:25px;background-color:#E4F4F6}.blockquote-w-image.alternative img{position:absolute;left:20px;top:25px;z-index:1;width:50px;border:1px solid #fff;box-shadow:0 0 10px rgba(34,34,34,0.2);border-radius:100%}.blockquote-w-image.with-border{background:none;border-left:4px solid #0FAEBF}.blockquote-w-image.with-border blockquote{background:none;border-radius:0;padding:10px 25px}.blockquote-w-image.with-border blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote:before{display:none}@media screen and (min-width: 769px){.blockquote-w-image img{position:absolute;left:0;top:0}.blockquote-w-image blockquote{padding:0 25px 0 125px;min-height:90px}}@media screen and (min-width: 1024px){.blockquote-w-image.alternative blockquote{padding-left:105px}.blockquote-w-image.alternative blockquote footer cite{font-size:16px}.entry-content .blockquote-w-image.alternative img{width:60px;left:25px}}<\/style><\/div>\n<h2>Tip #9: Seek Financial Compensation<\/h2>\n<p>Talking about money can make a lot of us uncomfortable, but the reality is that good medical care is expensive, especially when it comes to rare cancers. In fact, some estimates put the <a href=\"https:\/\/www.mesotheliomahope.com\/treatment\/costs\/\">cost of mesothelioma treatment<\/a> at $400,000.<\/p>\n<p><strong>You may be able to access <a href=\"\/legal\/compensation\/\">mesothelioma compensation<\/a> for treatment from a legal claim<\/strong>. Many mesothelioma survivors stress that the money they got by taking legal action was what allowed them to afford treatment.<\/p>\n<p>\u201cMonth by month, we had to make more loans. We spent all of our savings and all of the IRA, so we were busy looking for more ways to find money for treatment,\u201d said pleural mesothelioma survivor <a href=\"\/blog\/dr-bonnie-snyder-pleural-mesothelioma-survivor-story\/\">Dr. Bonnie Snyder<\/a>. \u201cAnd if we hadn&#8217;t gotten the settlement, we probably would not still be living where we are today.\u201d<\/p>\n<p>For pleural mesothelioma survivor David Rosedale, filing a legal claim also meant providing for his family. \u201cI decided to pursue a <a href=\"\/legal\/lawsuit\/\">mesothelioma lawsuit<\/a> because I needed to provide for my family, and I was not going to be able to work,\u201d he explained. \u201cAnd without the compensation, you&#8217;re pretty well lost.\u201d<\/p>\n<div class=\"blockquote-w-image \"><img decoding=\"async\" src=\"\/wp-content\/uploads\/2024\/10\/David-Rosedale-circle.png\" alt=\"\" \/><blockquote><p>&#8220;The results take away the monetary concerns that are associated with cancer, which is treatment and transportation and meeting your everyday bills. <strong>You can concentrate more on treatment and your family<\/strong> than you would if you didn&#8217;t have it.&#8221;<\/p>\n<footer>&ndash;<cite> David Rosedale, mesothelioma survivor<\/cite><\/footer><\/blockquote><style type=\"text\/css\">.blockquote-w-image{position:relative;margin:40px auto}.blockquote-w-image blockquote{background:none;border-left:none;padding:25px;margin-top:0;padding-bottom:0;font-size:inherit;line-height:inherit}.blockquote-w-image blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote p{margin-bottom:0}.blockquote-w-image img{width:100px;border:none;border-radius:100%;box-shadow:none;position:relative;margin:0 auto}.blockquote-w-image.alternative{margin:60px auto}.blockquote-w-image.alternative blockquote{padding:25px 25px 25px 80px;padding-bottom:25px;background-color:#E4F4F6}.blockquote-w-image.alternative img{position:absolute;left:20px;top:25px;z-index:1;width:50px;border:1px solid #fff;box-shadow:0 0 10px rgba(34,34,34,0.2);border-radius:100%}.blockquote-w-image.with-border{background:none;border-left:4px solid #0FAEBF}.blockquote-w-image.with-border blockquote{background:none;border-radius:0;padding:10px 25px}.blockquote-w-image.with-border blockquote footer cite{font-size:inherit}.blockquote-w-image blockquote:before{display:none}@media screen and (min-width: 769px){.blockquote-w-image img{position:absolute;left:0;top:0}.blockquote-w-image blockquote{padding:0 25px 0 125px;min-height:90px}}@media screen and (min-width: 1024px){.blockquote-w-image.alternative blockquote{padding-left:105px}.blockquote-w-image.alternative blockquote footer cite{font-size:16px}.entry-content .blockquote-w-image.alternative img{width:60px;left:25px}}<\/style><\/div>\n<h2>Contact Mesothelioma Hope for Support<\/h2>\n<p>At Mesothelioma Hope, each member of our team understands what you\u2019re going through. Our Patient Advocates are here to support patients, their loved ones, and <a href=\"\/resources\/caregivers\/\">caregivers<\/a> in any way we can.<\/p>\n<p><strong>We can help you:<\/strong><\/p>\n<ul>\n<li>Connect with leading cancer specialists<\/li>\n<li>Understand the pros and cons of various treatments<\/li>\n<li>Manage uncomfortable symptoms and side effects<\/li>\n<li>Pursue compensation for the expenses that insurance doesn\u2019t cover<\/li>\n<\/ul>\n<p><a href=\"\/about\/contact\/\">Contact us today to get started<\/a>. We\u2019re happy to answer any of your questions, and <strong>it\u2019s always free to speak with us<\/strong>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Being diagnosed with mesothelioma can bring a flood of emotions, from fear and anxiety to uncertainty about the future. If you or someone close to you is facing this devastating disease, it\u2019s normal to feel overwhelmed \u2014 but you don\u2019t have to do this alone. We\u2019ve gathered some of the most impactful and life-changing advice&hellip;<\/p>\n","protected":false},"author":35,"featured_media":25995,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[257],"tags":[],"class_list":["post-25993","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-survivor-stories"],"acf":[],"_links":{"self":[{"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/posts\/25993","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/users\/35"}],"replies":[{"embeddable":true,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/comments?post=25993"}],"version-history":[{"count":0,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/posts\/25993\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/media\/25995"}],"wp:attachment":[{"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/media?parent=25993"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/categories?post=25993"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/www.mesotheliomahope.com\/wp-json\/wp\/v2\/tags?post=25993"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}